Tag Archives: awareness

International Author Promotes Sickle Cell Disease through her Children Books

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Jenica Leah is an award winning children’s author and publisher and referred to as one of the UK’s leading ambassadors for sickle cell.  Living with sickle cell anaemia herself, she has battled with the many complications that come with the disorder including having a stroke at 14 and a hip replacement at 25; but she has never let this stop her from being who she is. From being a full-time model to organising and managing catwalks with an international events specialist, Jenica Leah refuses to let her condition hold her back.  After undergoing total hip replacement surgery in 2014, which changed her whole outlook on life and her perception of her illness, Jenica Leah vowed to help others living with the sickle cell condition by being more open about her health and her journey, and by doing more to create awareness and get people talking about it. With her confidence and determination, she doesn’t see life as challenging; instead she sees the world as her oyster with endless possibilities.

 

TRGB Media: Tell us about yourself a little more

Jenica Leah: My name is Jenica Leah and I am a 29-year-old from the UK living with sickle cell SS. Referred to as one of the UK’s leading ambassadors for sickle cell, I share my journey via my blogs Me Myself & sickle cell on my blogsite and on YouTube.. I am also a publisher and the award-winning author of the first children’s book series about sickle cell entitled My Friend Jen which was released in 2016.

TRGB: When did you first learned that you were diagnosed with Sickle Cell?

Jenica Leah: I was diagnosed from birth. My parents both knew they had the trait and knew there was a chance I would have sickle cell. They got the positive results 6 weeks after I was tested at birth.

TRGB: How is your whole experience living with the disease? What symptoms do you suffer the most from?

Jenica Leah: My experience living with sickle cell now is manageable, however it has taken me years of complications and learning to understand my body to get to this point. I would say the symptoms I have suffered from the most aside from bad pain crisis is all the unknown complications that can come with sickle cell as I feel like I have had almost all of them. I always used to have pneumonia as baby and toddler and spent a lot of time in hospital; my first crisis I was around 9 months old. I had a stroke at 14, acute chest syndrome at 16 which very nearly took my life, gall stones throughout my teenage years which lead to me eventually having my gall bladder removed at 24. I was diagnosed with Avascular necrosis in both hips and I had a total hip replacement in my left hip when I was 25 as a result. I have also had multiple blood clots, and liver cholestasis. All complications caused as a result of my sickle cell and the way it has affected my body.

TRGB: Was becoming an author something, you always wanted to do? What was the journey like?

Jenica Leah: I have always loved writing as it is my outlet for certain things. I always find writing about good days allow me to remember how I was feeling and enjoy the moment longer, and writing about bad days or tough times allows me to get it out of my system so I can let it go and not harbor negative emotions. Becoming an author was not something I had planned to do at all but the moment I decided to turn what I had written into a book I was motivated to get it done; nothing and no one was going to stop me. The journey was fun although I encountered a lot of bumps in the road which I had to find a way over in terms of getting my book published.

TRGB: What was the inspiration behind your book “My Friend Jen?”

Jenica Leah: The inspiration behind my book was to be able to give something to children who are growing up living with sickle cell today that would provide them with peace of mind about their condition and also let them know that having sickle cell should not stop them from achieving their dreams — no matter what they are.  Growing up I despised the fact that I had sickle cell and always used to ignore it or try and hide it; mainly because I didn’t understand what it was so it was difficult to explain that to others. With the first My Friend Jen Book it’s a simple way to explain what sickle cell is and the basics of how someone living with it can stay well.

TRGB: I see on your IG page that you have a lot of supporters with your book and movement. How is the marketing going for your book?

Jenica Leah: When I initially published and released my book I honestly didn’t have a marketing plan. I just released it and went with the flow but the feedback and amount of support I had was unbelievable and that’s when I realized that I had created something so beautiful and so beneficial, especially for children who had sickle cell and children with parents who have sickle cell. By that point my book was more less marketing itself, I believe because it is the only one of its kind at the moment.

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TRGB: Since the book release, what type of events has the book participated in?

Jenica Leah: Since the books release It has been nominated for and won awards, been highlighted by news outlets, book stores and in particular has had a major impact in health conferences and pharmaceutical research. I also launched something called My Friend Jen Projects to be able to host my own events for the book which would help those in other communities around the world who may not be able to have access to the book otherwise. The book donation projects have been a huge success so far with regular sponsors and encouragement for it to continue.

TRGB: When does the sequel to the first book come out? Is it the same concept from the first book?

Jenica Leah: The sequel will be released within the next several weeks and is now available to pre-order at a reduced price. My Friend Jen was always intended to be a series of books that follows Jen on her journey growing up with sickle cell so the concept is somewhat the same and readers can learn more about sickle cell and the things Jen goes through.

TRGB: Are you currently working on any new projects?

Jenica Leah: The next major project we have will be the Jamaica book donation project which will take place between January and March 2019. So far, we have done book donation projects in Gambia and Nigeria so we are really looking forward to Jamaica being the 3rd book donation project.

TRGB: How has becoming an author made you a better person?

Jenica Leah: Becoming an author has made me appreciate writers a lot more as I know the depths one has to go through to be able to produce a book that makes a difference. More than anything though, I would say that becoming an author has made me humble and motivated to continue to advocate for sickle cell as I can see how my children’s book and even my blog, has helped people to become more confident in sharing their journeys with sickle cell also.

TRGB: How can readers connect with you?

Jenica Leah: Readers can connect with me via @myfriendjenbooks on Facebook, Instagram and Twitter. They can also keep up to date with everything I have going on including new My Friend Jen releases and updates, projects and events by subscribing to the Me Myself & Sickle Cell blog site:  http://www.jenicaleah.wordpress.com

TRGB: As an advocate of SCD, what types of projects or events do you participate in to bring more awareness in the communities?

Jenica Leah: I try and get involved in as much events in the community as I can whether it’s fundraising events, motivational events or even fun days for children; there is always space to highlight sickle cell. I have also arranged blood donation days to encourage more blood donors and been involved in youth and school projects too.

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Taraji P. Henson Launches Foundation to Bring Awareness for Mental Health and to Honor her Dad

Photo Courtesy by Getty Images

Actress Taraji P. Henson just launched a new foundation called “The Boris Henson Foundation” in honor of her late father that passed away in 2006 due to liver cancer.  But the main reason why Henson is doing this is to increase awareness for mental health among the black community.  

Her father also suffered with mental health so Henson wanted to do something revolving around that.  He was also a Vietnam veteran who suffered through various of things; being homeless was one of them.  Henson named the foundation (BLHF) after her dad is because of his unconditional love.  The foundation will launch a special fundraiser called “Taraji’s Boutique of Hope” which will be held on September 22nd in Beverly Hills.  The goal of the fundraiser is to raise funds to provide resources to increase mental health support in urban schools. 

 

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Overcoming My Fears and Trusting God

I had a bad day. It was one of those days where I allowed the struggles of my journey to consume me and harden my spirit.

As I sat silently on my couch I found myself thinking, “I will never know what it’s like to bring a child into this world, I will never experience motherhood, I will never this…I will never that…I will never.

I approached my husband and said, “I’m having one of those days. I don’t know about this kid thing. I don’t know if IVF or IUI is going to work. I don’t know if we’re going to get to experience being parents. I don’t know if….” and that’s when he stopped me and said, “Do you not trust God?” I replied, “Yes, but…”

Then stop worrying. All that is is fear. The devil wants you to be discouraged by making you believe that our journey will end without kids.” He said.

I sat silent for a moment because he was right.

He continued saying, “When that happens you have to stop and pray. No matter how you feel. Trust God Teresa. He will give you the desires of your heart. We will have children no matter what route we take. You do your part and let God do his.”

He was speaking the truth.

No, I didn’t walk away encouraged and ready to tackle my fears. I walked away feeling convicted because I really doubted God. I allowed the fear that crossed my mind to tackle my heart.

In that moment I prayed and asked God to forgive me for doubting him. Forgive me for thinking that he wouldn’t do what he said he would. Forgive me for thinking so negatively. Forgive me for allowing doubt to ruin my spirit. Forgive me…

Today is better. I’m working on tackling the fears that have been trying to attack my mind. I’m working on not allowing those thoughts to consume me. I know it’s going to get better. I trust God that it will.

 

 

 

When Your Plans Aren’t Working

 

For I know the plans I have for you,” declares the LORD, “plans to prosper you and not to harm you, plans to give you hope and a future. – Jeremiah 29:11

By Teresa Adams

You see – since I could remember children have always been something that I wanted. I love them – even the ones that need a little extra loving. I started babysitting at the age of 12 and loved all the phases of it. I loved walking the kids to the park, watching them play, walking them back to the house while singing songs, styling all the little girls hair, rough housing with the boys and reading bedtime stories.

I always told myself I wanted a big family – four kids – three boys and one girl. I wanted to start my family no more than two years after I got married. I prayed that the first three would be the boys and the last the girl.

Y’all. I had this planned and nothing was going to stop me; so I thought.

It was at the second year of marriage when I noticed that my plan was falling apart. My dreams of motherhood was slowly but surely slipping away. It was at that time that I began to feel hopeless.  

Fast forward a few years – “When are you both planning on having children?” “You’ve been married that long and don’t have any little ones? Well, what are you waiting for?” “You better start having kids before you get too old.”

For years I would respond in a way I assumed would please the person asking. I would answer with one of the three canned retorts:

“My husband is getting out the military and we’re relocating.”

 “We’re not ready right now. My husband is getting his Bachelors and I’m working on my Masters.”

“We’re relocating soon and would like to wait until we get settled in to our new destination.”

I responded for whatever season I was in at the time. However, the truth was I was having trouble and Endometriosis was the reason.  

I remember the first time someone asked me a question about having children. I wanted to respond truthfully but I was ashamed, embarrassed and quite frankly not strong enough to answer any follow up questions. My embarrassment and shame eventually turned to anger and rage. I was so tired of all the baby questions. I wanted to scream LEAVE ME ALONE. But, all I could do was respond according to my season, fake a smile, go home and drown myself in tears.

So here is the truth…

I am 32 going on 33. My husband and I have been married 9 going on 10 years. We’ve been trying for 8 years with no success and I’m trying to stay strong and trust God. But if I can be honest – it’s hard.  

My life without children is a hard pill to swallow. However, God renews my peace and strength daily so that I can keep fighting and pushing through. This is all in God’s plan and I rather his will be done than my own.

I don’t know what difficulties you’re facing today. It could be the same struggle I’m facing or it could be something completely different. But what I do know is that in the good times and the bad God is good.

The devil will come during your most vulnerable moments and try to convince you that God doesn’t care about what you’re going through and doesn’t love you enough to do anything to help you. Don’t listen. Instead, remember this:

  • God is Good
  • God loves you
  • God is a healer
  • God always wants the best for you

I know God will grant me the desire of being a mother one day. So until then I’ll wait patiently in peace because I know in the end when I see my child it would have been nothing but the promise of God.

 

Teresa is a Health and Awareness Blogger