Tag Archives: life and wellness

International Author Promotes Sickle Cell Disease through her Children Books

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Jenica Leah is an award winning children’s author and publisher and referred to as one of the UK’s leading ambassadors for sickle cell.  Living with sickle cell anaemia herself, she has battled with the many complications that come with the disorder including having a stroke at 14 and a hip replacement at 25; but she has never let this stop her from being who she is. From being a full-time model to organising and managing catwalks with an international events specialist, Jenica Leah refuses to let her condition hold her back.  After undergoing total hip replacement surgery in 2014, which changed her whole outlook on life and her perception of her illness, Jenica Leah vowed to help others living with the sickle cell condition by being more open about her health and her journey, and by doing more to create awareness and get people talking about it. With her confidence and determination, she doesn’t see life as challenging; instead she sees the world as her oyster with endless possibilities.

 

TRGB Media: Tell us about yourself a little more

Jenica Leah: My name is Jenica Leah and I am a 29-year-old from the UK living with sickle cell SS. Referred to as one of the UK’s leading ambassadors for sickle cell, I share my journey via my blogs Me Myself & sickle cell on my blogsite and on YouTube.. I am also a publisher and the award-winning author of the first children’s book series about sickle cell entitled My Friend Jen which was released in 2016.

TRGB: When did you first learned that you were diagnosed with Sickle Cell?

Jenica Leah: I was diagnosed from birth. My parents both knew they had the trait and knew there was a chance I would have sickle cell. They got the positive results 6 weeks after I was tested at birth.

TRGB: How is your whole experience living with the disease? What symptoms do you suffer the most from?

Jenica Leah: My experience living with sickle cell now is manageable, however it has taken me years of complications and learning to understand my body to get to this point. I would say the symptoms I have suffered from the most aside from bad pain crisis is all the unknown complications that can come with sickle cell as I feel like I have had almost all of them. I always used to have pneumonia as baby and toddler and spent a lot of time in hospital; my first crisis I was around 9 months old. I had a stroke at 14, acute chest syndrome at 16 which very nearly took my life, gall stones throughout my teenage years which lead to me eventually having my gall bladder removed at 24. I was diagnosed with Avascular necrosis in both hips and I had a total hip replacement in my left hip when I was 25 as a result. I have also had multiple blood clots, and liver cholestasis. All complications caused as a result of my sickle cell and the way it has affected my body.

TRGB: Was becoming an author something, you always wanted to do? What was the journey like?

Jenica Leah: I have always loved writing as it is my outlet for certain things. I always find writing about good days allow me to remember how I was feeling and enjoy the moment longer, and writing about bad days or tough times allows me to get it out of my system so I can let it go and not harbor negative emotions. Becoming an author was not something I had planned to do at all but the moment I decided to turn what I had written into a book I was motivated to get it done; nothing and no one was going to stop me. The journey was fun although I encountered a lot of bumps in the road which I had to find a way over in terms of getting my book published.

TRGB: What was the inspiration behind your book “My Friend Jen?”

Jenica Leah: The inspiration behind my book was to be able to give something to children who are growing up living with sickle cell today that would provide them with peace of mind about their condition and also let them know that having sickle cell should not stop them from achieving their dreams — no matter what they are.  Growing up I despised the fact that I had sickle cell and always used to ignore it or try and hide it; mainly because I didn’t understand what it was so it was difficult to explain that to others. With the first My Friend Jen Book it’s a simple way to explain what sickle cell is and the basics of how someone living with it can stay well.

TRGB: I see on your IG page that you have a lot of supporters with your book and movement. How is the marketing going for your book?

Jenica Leah: When I initially published and released my book I honestly didn’t have a marketing plan. I just released it and went with the flow but the feedback and amount of support I had was unbelievable and that’s when I realized that I had created something so beautiful and so beneficial, especially for children who had sickle cell and children with parents who have sickle cell. By that point my book was more less marketing itself, I believe because it is the only one of its kind at the moment.

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TRGB: Since the book release, what type of events has the book participated in?

Jenica Leah: Since the books release It has been nominated for and won awards, been highlighted by news outlets, book stores and in particular has had a major impact in health conferences and pharmaceutical research. I also launched something called My Friend Jen Projects to be able to host my own events for the book which would help those in other communities around the world who may not be able to have access to the book otherwise. The book donation projects have been a huge success so far with regular sponsors and encouragement for it to continue.

TRGB: When does the sequel to the first book come out? Is it the same concept from the first book?

Jenica Leah: The sequel will be released within the next several weeks and is now available to pre-order at a reduced price. My Friend Jen was always intended to be a series of books that follows Jen on her journey growing up with sickle cell so the concept is somewhat the same and readers can learn more about sickle cell and the things Jen goes through.

TRGB: Are you currently working on any new projects?

Jenica Leah: The next major project we have will be the Jamaica book donation project which will take place between January and March 2019. So far, we have done book donation projects in Gambia and Nigeria so we are really looking forward to Jamaica being the 3rd book donation project.

TRGB: How has becoming an author made you a better person?

Jenica Leah: Becoming an author has made me appreciate writers a lot more as I know the depths one has to go through to be able to produce a book that makes a difference. More than anything though, I would say that becoming an author has made me humble and motivated to continue to advocate for sickle cell as I can see how my children’s book and even my blog, has helped people to become more confident in sharing their journeys with sickle cell also.

TRGB: How can readers connect with you?

Jenica Leah: Readers can connect with me via @myfriendjenbooks on Facebook, Instagram and Twitter. They can also keep up to date with everything I have going on including new My Friend Jen releases and updates, projects and events by subscribing to the Me Myself & Sickle Cell blog site:  http://www.jenicaleah.wordpress.com

TRGB: As an advocate of SCD, what types of projects or events do you participate in to bring more awareness in the communities?

Jenica Leah: I try and get involved in as much events in the community as I can whether it’s fundraising events, motivational events or even fun days for children; there is always space to highlight sickle cell. I have also arranged blood donation days to encourage more blood donors and been involved in youth and school projects too.

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Taraji P. Henson Launches Foundation to Bring Awareness for Mental Health and to Honor her Dad

Photo Courtesy by Getty Images

Actress Taraji P. Henson just launched a new foundation called “The Boris Henson Foundation” in honor of her late father that passed away in 2006 due to liver cancer.  But the main reason why Henson is doing this is to increase awareness for mental health among the black community.  

Her father also suffered with mental health so Henson wanted to do something revolving around that.  He was also a Vietnam veteran who suffered through various of things; being homeless was one of them.  Henson named the foundation (BLHF) after her dad is because of his unconditional love.  The foundation will launch a special fundraiser called “Taraji’s Boutique of Hope” which will be held on September 22nd in Beverly Hills.  The goal of the fundraiser is to raise funds to provide resources to increase mental health support in urban schools. 

 

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7 Reasons Why Life is Amazing

We all have one life to live, so why not live it to the fullest?!  Here are some great reasons on why life is so darn amazing!

  1. Living up to your Dreams!  You are finally getting the chance to do what you have always dream of as an entrepreneur or a visionaire.  Take one step closer to your dreams and then stand on top of the world!
  2. Doing what you Enjoy the most!  Just like what I’m doing now; writing on a motivational piece that will empower you all that are reading 🙂 Without life, I wouldn’t be able to do just that!  Whatever you enjoy doing in life, JUST DO IT! Whether it is walking your dog every day, mowing the lawn, surfing or maybe making jewelry, continue to live up to your potential and enjoy your hobbies!
  3. Having Freedom! Other countries doesn’t have this type of privilege just like in the United States, but we all have the freedom and luxury to do what we want to do (just don’t break any laws doing it lol) and enjoy them to the fullest!  Don’t you just love being free and going outside to smell the roses anytime that you want to?
  4. Being Sociable!  You can go to your favorite spot every weekend and just have a great time with friends or family.  Living your life while being sociable and having a great time! Life can be just that good!
  5. You are still alive! What a great reason this is to why life is so amazing! You always hear on the news that innocent lives are taken away from people that haven’t committed any crime or hasn’t done anything to get caught up with the wrong crowd.  From children to adults, lives are taken away every second.  So be grateful that you are still alive and that you still have breath in your body! Life is too short so never take it for granted!
  6. Accomplishing your goals! Just like your dreams, you can achieve all of your goals one day and one step at a time!
  7. Create Memories! What type of world would you live in if you couldn’t create any memories? Create special moments of your life and each year and live up to your expectations in life.  Whether they are bad memories, sad memories or good memories, it’s still part of your amazing life!

So now do you see why your life is so amazing? 🙂 Live to Learn and Learn to Live!

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